Privacy concerns of the Australian My Health Record: Implications for other large-scale opt-out personal health records

作者：

Highlights：

• 10 categories of stakeholders expressed 9 types of privacy concerns in the Twitter discussions about the Australian My Health Record.

• Different roles of stakeholders demonstrate different focuses of privacy concerns, and it will be useful to involve them early in the rollout of personal health records.

• Stakeholders of personal health records shows enthusiasm for improving privacy issues, and social media can be a useful channel for collecting feedback.

• We also discuss the implications for improving the consent model and third-party access of personal health records.

摘要

•10 categories of stakeholders expressed 9 types of privacy concerns in the Twitter discussions about the Australian My Health Record.•Different roles of stakeholders demonstrate different focuses of privacy concerns, and it will be useful to involve them early in the rollout of personal health records.•Stakeholders of personal health records shows enthusiasm for improving privacy issues, and social media can be a useful channel for collecting feedback.•We also discuss the implications for improving the consent model and third-party access of personal health records.

论文关键词：My Health Record,Twitter,Privacy concerns,Personal health record,Topic modeling

论文评审过程：Received 27 March 2020, Revised 5 August 2020, Accepted 6 August 2020, Available online 18 August 2020, Version of Record 20 October 2020.

论文官网地址：https://doi.org/10.1016/j.ipm.2020.102364